Friday, June 6, 2014

Episode 36: Slaughter, Again. Again. Please Tell Me, Not Again

My Aunt Ruth and Uncle Freeman met on a shooting range in the 1940s. He, a tall, handsome, intelligent man and she, a drop-dead beauty of Norwegian descent. Damn those puns! They crop up everywhere, like shooters in malls and schoolyards. Violence even runs through our language--drop-dead gorgeous was my Aunt Ruth, and not only that:

Ruth (as I called her) was a dead-eye shot.

NRA members both, Freeman and Ruth married, settled down a few blocks from my parents' home, and got to work producing three handsome, strapping boys. The boys grew up as mini-sharpshooters, accompanying the folks to gun ranges and competitions, and taking part themselves.

Ruth, a crackshot, outshot all the women and quite a few of the men, often Freeman himself. In fact, she was so damned good she was Captain of the U.S. Women's Rifle Team. I will dig up a copy of her  photo in the Washington Post, and you'll see what I'm talking about.

But Freeman and Ruth didn't just shoot guns. They loved to round dance--a sort of square dance--and Ruth's wide-skirted shimmering dresses and layers of petticoats billowed and swirled as my uncle twirled his Norwegian Annie Oakley around the room with others who shared their love for the dance. After she died, Ruth's son Don spoke at Arlington Cemetery where she was to be entombed, the space beside her reserved for her husband, who would receive his own ___-gun salute after his funeral in the little stone chapel in the midst of those green hills and endless white slabs of marble not too many years later. "My mother grew up in northern Michigan, the child of first-generation Norwegian Americans, and she loved to figure skate. As a boy, I'd watch her on the ice--" Don's voice cracked--"and I thought I'd never seen anyone so beautiful in my life."

Freeman had survived a stroke many years before, and they'd moved to Leisure World to make things easier for him. Ruth took care of him while he continued his passion since retiring from the United States General Accounting Office--genealogy. He'd traced my mother's line back to the 9th Century in some lines. The two of them traveled to Europe and Norway to scour court records and cemeteries for blood links to the past, and they learned that Ruth derived from early Norwegian nobility. Freeman typed complicated lines of family history on a manual typewriter with the two fingers still functional enough after the stroke to do so.

They traveled, they danced, they researched, they visited and entertained their family, they went on Caribbean cruises with my parents during which the fine dining and dancing never stopped--they were, in short, very well-rounded (not to pun their form of dancing) human beings who happened to enjoy guns but didn't make them the end-all and be-all of their existence.


Friday, April 18, 2014

Episode 35: Weed or Wonder? Early Spring Greens in Appalachia

Weed or Wonder? is a column I wrote for the Appalachian Independent for a couple of years. The online newsletter was developed by a group of concerned citizens--concerned about the journalistic integrity of the local newspaper and wishing for fresh voices and more divergent views via a "Dialogue of Democracy."

My true passion is our natural world, from turtles and newts to tigers and owls. And plants. Particularly beautiful flowers. Particularly wildflowers. Particularly edible and/or culinary plants. Particularly gardening. Particularly foraging. Particularly fungi.

But fungi will have to wait for another episode--especially since my hours of scouring the forest floor today led to the discovery of not one single morel. Still too early, for one thing, and for another: I've never found a morel in my woods. Yet my woods should  produce morels. My woods have a northeastern exposure. My woods are hardwoods, particularly oaks and maples. My woods are moist and filled with secret little woodland plants known to grow where morels do. Morels, where art thou? Have you merely hid beneath the leaf litter each spring, camouflaged from my inexperienced eyes?

This year, if a morel exists on my property, I will find it. Now that I no longer can work, I can certainly spend an hour or two in the woods, even if my butt is glued to a boulder because I don't have enough energy to risk my ankles to the deep spring-and-boulder field on the mountain rising behind my "cottage." And now that fungi have stolen two entire paragraphs--they have a way of sneaking up on us, don't they?--I'll list below the plants I've found thus far this spring, and they are few and far between at the moment--we had snow yesterday, for heaven's sake.

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Morels - Fungus Par Excellence


Thursday, March 27, 2014

Episode 34: Something Other than Health Problems: Muskrats! Field Voles in the Cottage!


Never did I intend this blog to be so consumed with health issues--BO-RING! But those have consumed me of late, mostly because of not having a definitive diagnosis to explain all my increasingly debilitating symptoms. At last, we seem to be on the right track vis-a-vis both of those things. I'm still convinced it's mytonoic dystrophy or something very similar, and I'm waiting for a date for my consultation at the Johns Hopkins Muscular Dystrophy Clinic, which wonderful Dr. A is referring me to. Alas, I thought a DNA blood test would be cheaper than a spinal tap, but he told me they run something like 2 grand, and he wanted an expert to evaluate me and test me.

More about that in a future episode.

So, WHAT ABOUT MUSKRATS, the title of this episode? You know me. Digression is my middle name.

Monday, January 20, 2014

Episode 33: Mary Dell, MD (Medical Detective): Another MD, Myotonic Dystrophy--Could this be it?



For some time now, I've been convinced that at least a large percentage of my maladies (and, lord, there are plenty of them to divvy up) correspond to some sort of neurological disorder and, most likely, a neuromuscular disorder.

As you may or may not be aware, I am a Master's-prepared medical librarian, and conducting literature searches for physicians is something I have been doing for many years.  Thus, I am proficient in medical literature research.  In previous episodes, I've laid out my evidence that there is something going on in my hypothalamus, a critical part of the brain that sends hormonal messages to the pituitary, which is more commonly known for as the director in the brain for autonomic functions such as breathing, heart rate, sleep/wake cycle, temperature, etc. I have documented problems in each of these areas.

I have many of the signs (quantifiable evidence) and symptoms (subjective, qualitative evidence) of multiple sclerosis and some of the muscle dystrophies.  In fact, my neurologist, the wonderful, eminent, and human Dr. A., told me last week he would diagnose me now with MS based on my symptoms and the diffuse periventricular white matter lesions my MRI shows, except that I'm "too old" for a new MS diagnosis and also do not have lesions in my cervical spinal column, as would be expected with MS.

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Saturday, December 14, 2013

Episode 32: Wegener's Granulomatosis Rears its Ugly Nazi Head, and It's Got a Hole Right in the Middle of its Face

Okay, so maybe he was a Nazi and maybe he wasn't, but based on some research that he WAS, the doctor whose name stands for granulomatosis with polyangiitis, today's "preferred," non-epynomous name for what used to be called Wegener's Granulomatosis, I'll try to use the newer name, or GPA for short.

Whatever the hell it's called, it's hell.

Okay, I don't even have a firm diagnosis at this point--or, rather, I don't have the labs to back up the clinical diagnosis I was given by my Johns Hopkins rheumatologist, but given the fact that this is the place where the best specialists in most fields hang their pointy hats, I have to accept that she may well be right.

When I saw the kidney/vasculitis specialist for Wegener's a few months ago, she told me I needed to see the rheumatologist on an ongoing basis.  I'd told her I wanted to cancel those appointments because my symptoms weren't bad at all--I don't enjoy these visits to Baltimore physicians and would like to minimize the pain in the ass of having to go there.

But today I just want to bitch a little about GPA or whichever vasculitis is apparently destroying my body one tiny bit of artery at a time.  So, to update all my loyal fans (I think my only readers are what's known as pirate or vampire sites that click up your viewings though no one is actually viewing anything), these are the symptoms of GPA I've had and that are currently emerging.

I'm not going into all the other damned conditions I have; in one of my earlier episodes I list them, and it's just too depressing to go through again.

So here's the timeline, more or less, for JUST GPA in my life:


Monday, December 9, 2013

Episode 31 - On Trickle-Down Economics--Have you noticed the word "trick" starts the whole concept?

Before I get started, I want to thank my Uncle Freeman (marvelous name, isn't it?  So Scottish).  He was on duty in Hawaii on the day Pearl Harbor was struck.  Today is the anniversary of that day in infamy.  I am so grateful that Freeman lived, so grateful he was my uncle and his wife my aunt--beautiful, beautiful Ruth--so grateful he lived so he could father all three of the sons who would become my tall, handsome cousins when I entered the family.  Thank you, Freeman, and may you be round dancing and meeting all those ancestors you traced back to the 9th Century in heaven!

Now, back to the business of the day.

One of Reagan's two initiatives that have altered our world so drastically, leaving us in the midst of turmoil and fear and need (the other being the Reagan Doctrine--another episode):  Trickle-Down Economics. Have you noticed that the word "trick" starts the whole concept?

The idea was spoon fed to the American public by claiming that the method would grow jobs and make our economy stronger.

How?  It's simple!  Before TRICKle Down, everyone in the U.S. paid approximately the same rate in taxes--that is, other than the very poor who were given a break--something the gimmes resent so horribly even though that "break" doesn't even compare to the mega-rich's robbery legally sanctioned by this policy.

So, let's take the richest among us and give them a TAX BREAK!  If we do that, they will invest all that extra money into new ventures, new jobs, and new wealth for everyone!  Right?!

How dumb do you have to be to believe that?

Let's make the money earned on investments an exception from regular old income taxes for wages EARNED.  Let's tax investments at a mere 15 percent, rather than the 30-something they used to have to cough up like the working schmucks still do.  How hard is it to do that math?  Take away money from the public coffers, and not just any money, BIG MONEY, and it will miraculously re-appear when the masses have good-paying jobs.  Um.   I think the other half of that math equation has been zeroed out.  So where will the money come from?  That's right, sports fans, you and me, the working stiffs whose checks get smaller every year theirs get fatter.  Damned obese, actually.

Let's let the rich get richer on their investments--no work required to do that, just money, and they've got plenty of that, so let's just make it easier for them to make MORE money and cut their tax rates by more than half. There's a sucker born every minute, and a whole lot of them buy into this malarkey.

Because we ALL know that the rich have the best in mind for the rest of us.  They are always willing to share their wealth. (Ooooooooooooooooooh, that sounds Socialist; gives me the chills; god knows it's a far scarier thing for everyone to be entitled to a reasonable living than for all the money to be hoarded at the tippy top while the rest of us suffer.)

But wait?  With all that extra money we've given them, why are the Mega Rich sending all the jobs overseas? That's not what Ronnie promised!  Why are they closing factories and plants here in the U.S., the  place their money was supposed to trickle down to?  Why are they buying up small corporations that are barely making it, bankrupting them, and declaring bankruptcy so they don't have to pay anything back, and leaving the tab with the taxpayers?  And WHY THE HELL do half the citizens they are shoving this to keep believing their lies and buying into their crap?  Oh, wait, they can't buy into it--they don't have enough money left.  They just give their brains, hearts, and souls over to it and watch their assets dwindle.

TRICKLE DOWN?

The only things that have trickled down in this country since the Reagan era are the number of jobs in this nation,
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the amount of money in our bank accounts,
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the amount of money in our retirement funds, and, most of all,
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our quality of life,
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our hopes for the future, our hopes for our children's future . . .


Tuesday, November 5, 2013

Episode 30: What's My Name? Mary Dell, MD (Medical Detective)

Here’s a call out to the then-Snoop Dogg (now "Lion," or was last I heard) for the use of his title—gotta love that tune! http://www.youtube.com/watch?v=wHKEJqMSiDg[Contains “obscene” language.  And while we’re discussing that, here’s a link to George Carlin’s “SevenDirty Words” to loosen you up.]

Okay, if your ears can't handle a little profane reality--here's what I'm really talking about today:  MYSTERY SOLVED, or at least a huge chunk of it, no thanks to the doctor/patient relationship I'm now negotiating with my much-loved primary care physician who, I fear, is burning out on me and on her practice in general.  And who can blame her?  Our health care system is so messed up today with everyone's running a patient's care OTHER than her own doctor--that's backasswards.  If I were a caring physician today, I'd be as burned out as she is.  I could just as easily have included this in my Down the Rabbit Hole series on the madness of today’s health care system as the story starts with more of that madness.  First, I will lay out the facts: