Discouragement: the scourge of chronic disease.
I do my best not to wallow in it; I try to push it away when it comes crawling in, like a fog under the door. Even when I’m immersed in it, I hate it. I’m afraid of it. I worry that it’s right, and I’m wrong, and one day I’m just going to have to give in to its seduction.
Yet I’d be lying if I pretended it didn’t happen.
It’s not something I like to talk about. As bestselling author Laura Hillenbrand says about chronic disease, “I didn’t want to talk about it very much because I had the experience of being dismissed and ridiculed.” No one wants to hear a sob story, and persons with chronic disease can look perfectly healthy most of the time, so the inability to apply the stamina of most persons our age to our lives becomes suspect in others' eyes. Better to only imagine people think you're faking, not to see it in their eyes.
I do my best not to wallow in it; I try to push it away when it comes crawling in, like a fog under the door. Even when I’m immersed in it, I hate it. I’m afraid of it. I worry that it’s right, and I’m wrong, and one day I’m just going to have to give in to its seduction.
Yet I’d be lying if I pretended it didn’t happen.
It’s not something I like to talk about. As bestselling author Laura Hillenbrand says about chronic disease, “I didn’t want to talk about it very much because I had the experience of being dismissed and ridiculed.” No one wants to hear a sob story, and persons with chronic disease can look perfectly healthy most of the time, so the inability to apply the stamina of most persons our age to our lives becomes suspect in others' eyes. Better to only imagine people think you're faking, not to see it in their eyes.
