Okay, so maybe he was a Nazi and maybe he wasn't, but based on some research that he WAS, the doctor whose name stands for granulomatosis with polyangiitis, today's "preferred," non-epynomous name for what used to be called Wegener's Granulomatosis, I'll try to use the newer name, or GPA for short.
Whatever the hell it's called, it's hell.
Okay, I don't even have a firm diagnosis at this point--or, rather, I don't have the labs to back up the clinical diagnosis I was given by my Johns Hopkins rheumatologist, but given the fact that this is the place where the best specialists in most fields hang their pointy hats, I have to accept that she may well be right.
When I saw the kidney/vasculitis specialist for Wegener's a few months ago, she told me I needed to see the rheumatologist on an ongoing basis. I'd told her I wanted to cancel those appointments because my symptoms weren't bad at all--I don't enjoy these visits to Baltimore physicians and would like to minimize the pain in the ass of having to go there.
But today I just want to bitch a little about GPA or whichever vasculitis is apparently destroying my body one tiny bit of artery at a time. So, to update all my loyal fans (I think my only readers are what's known as pirate or vampire sites that click up your viewings though no one is actually viewing anything), these are the symptoms of GPA I've had and that are currently emerging.
I'm not going into all the other damned conditions I have; in one of my earlier episodes I list them, and it's just too depressing to go through again.
So here's the timeline, more or less, for JUST GPA in my life:
Whatever the hell it's called, it's hell.
Okay, I don't even have a firm diagnosis at this point--or, rather, I don't have the labs to back up the clinical diagnosis I was given by my Johns Hopkins rheumatologist, but given the fact that this is the place where the best specialists in most fields hang their pointy hats, I have to accept that she may well be right.
When I saw the kidney/vasculitis specialist for Wegener's a few months ago, she told me I needed to see the rheumatologist on an ongoing basis. I'd told her I wanted to cancel those appointments because my symptoms weren't bad at all--I don't enjoy these visits to Baltimore physicians and would like to minimize the pain in the ass of having to go there.
But today I just want to bitch a little about GPA or whichever vasculitis is apparently destroying my body one tiny bit of artery at a time. So, to update all my loyal fans (I think my only readers are what's known as pirate or vampire sites that click up your viewings though no one is actually viewing anything), these are the symptoms of GPA I've had and that are currently emerging.
I'm not going into all the other damned conditions I have; in one of my earlier episodes I list them, and it's just too depressing to go through again.
So here's the timeline, more or less, for JUST GPA in my life: