Now, we may yet find out it's not Wegener's; perhaps it's cryoglobulinemia, which has many of the same effects. Since I also have hepatitis C, the cryo is a good possibility--it is common with folks who've had hep C for many years, as have I. Wegs and cryo both affect the blood vessels, which then affect vital organs, such as the lungs and kidneys. When I say "affect," I mean more or less destroy. It's true--my nose has necrosis (dead tissue) in it from the inflammatory damage. So far I have not tested positive for ANCA antibodies, which would have just about confirmed the Wegener's. But that doesn't mean I don't have it, as a small percentage of "Weggies" tests negative and/or may develop the antibodies later.
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| From MoonDragon's Health & Wellness http://www.moondragon.org/health/disorders/wegenersgranulomatosis.html |
